Ghost mug is a donation towards my basic living expenses. If you don’t want ceramics just now but would like to offer help you can buy a ghost mug. Or you can add one to your purchase. There is no tangible mug, it’s a gesture on the part of the giver. 

Severe chronic illness is beyond comprehension and even the best explanation will only make sense to people who have a similar experience. 

On top of the actual physical and mental pain, there is an eroding of my sense of self, my ability to secure my future and the grief of what I’ve lost. It’s like living in constant limbo and it feels like the rug will get pulled out any moment. Is there even a rug here? I do not have a partner or family for support so there is no backup. It’s scary.

I don’t talk about this nearly as much as it is happening to me. It would estrange people to do so and I want to have friends. Coming to terms with the fact that people who love you can’t or won’t help is just one aspect of the grief involved in chronic illness. 

So I wanted to say a little more about my situation knowing that some folks wonder and some wish they could do something to help. Thank you.